Blog of Rights

Today's the Day: Challenging Human Gene Patents Before the Supreme Court

By Sandra Park, ACLU at 10:16am

Today, we're headed to the U.S. Supreme Court for oral argument in our challenge to human gene patents...

Reading of Emails Without Warrant Likely Extends Beyond IRS

By Nathan Freed Wessler, Staff Attorney, ACLU Speech, Privacy & Technology Project at 8:23am

The ACLU released documents last week indicating that the criminal investigative arm of the IRS doesn’t think it always needs a warrant to read people’s email when investigating them for tax crimes. The revelation garnered widespread media attention (see examples here, here, and here). We called on the IRS to clarify its policy but, unfortunately, the agency issued only a brief, confusing statement that failed to explain its actual policy and practices. As we said last week, because our emails, text messages, and other electronic communications contain some of our most sensitive and private information, it is crucial that federal law enforcement agencies obtain a warrant from a neutral judge before accessing them.

Filmmaker Joanna Rudnick on Life with the “Breast Cancer Gene” and Human Gene Patenting

By Joanna Rudnick, Activist, Filmmaker at 1:19pm

In the Family (POV 2008) tells the first-person story of director Joanna Rudnick as she tries to decide on a course of action after testing positive for the BRCA1 mutation, the "breast cancer gene." To raise public awareness of the issues being presented in the April 15th Supreme Court hearing in our case challenging gene patents, Rudnick, POV, and Kartemquin Films will re-release the film online for free streaming. The film features Rudnick's probing interview with Myriad Genetics' founder about its patents on the genes. Today, Rudnick gives POV an update on her health and personal life, and addresses the upcoming Supreme Court case regarding human gene patenting. An excerpt of the update appears below – to read Rudnick's thoughts in full, and to watch In the Family, go to: http://to.pbs.org/ZjQjcW

Voices on Human Gene Patents: It's Time to Free Our Genes

By Christopher E. Mason, Assistant Professor of Computational Genomics, Weill Cornell Medical College, Affiliate Fellow, Information Society Project of Yale Law School & Jeffrey Rosenfeld, Assistant Professor of Medicine, New Jersey Medical School at 12:29pm

Even though they’ve been in our families since the dawn of man, our genes do not belong to us. They’ve been claimed by companies that hold patents on the DNA from our cells. Over the past 20 years, at least 41 percent of our genes have become the intellectual property of corporations. These patent claims contradict an intuitive sense that our DNA is no less ours than our lungs or kidneys. More importantly, these patents, covering thousands of human genes, restrict our doctors’ ability to look at our DNA and plan ahead for our medical treatment.

CISPA Remains Fatally Flawed After Secret Committee Markup

By Michelle Richardson, Legislative Counsel, ACLU Washington Legislative Office at 12:20pm

The House Permanent Select Committee on Intelligence on Wednesday marked up CISPA, the controversial cybersecurity bill that allows companies to share their customers' sensitive internet information with each other and the government. The bill's sponsors and corporations are not only declaring victory, but aggressively arguing that all privacy and civil liberties problems have been solved.

This couldn't be further from the truth.

We have flagged four general categories of problems in CISPA that have to be fixed before it is passed, and the markup only substantially fixed one of them:

The Road Ahead for Newtown Legislation

By Alex Berger, Legislative Assistant, ACLU at 11:57am

At the beginning of the first Senate hearing on the Sandy Hook Elementary School shootings, Sen. Dick Durbin (D-IL) instructed those in the hearing room to stand if they had been affected by gun violence. As nearly everyone in the packed hearing room, including several Senators, stood in silence, the powerful tone was set for the debate over what to do next.

For several months, I have attended every event and hearing on Capitol Hill regarding the Senate's response to the Newtown shootings. I saw the father of a slain first grader whose uncontrollable sobbing at a Judiciary Committee hearing left everyone in the room quiet and still. I witnessed testimony from a doctor who struggled to retell the story of removing bullets from the heads of five-year-olds. And I saw incredible passion and a sense of purpose from both sides of the aisle.

Common Ground on Campaign Finance

By Gabe Rottman, Legislative Counsel, ACLU Washington Legislative Office at 11:46am

Earlier this week, a Senate Judiciary subcommittee, chaired by Sen. Sheldon Whitehouse (D-R.I.), held a hearing on campaign finance law enforcement. We submitted comments highlighting a few areas of common ground between the ACLU and proponents of campaign finance reform.

Why Won’t the IRS Deploy Basic Web Security?

By Katie Haas, ACLU Human Rights Program & Chris Soghoian, Principal Technologist and Senior Policy Analyst, ACLU Speech, Privacy and Technology Project at 10:45am

This tax season, when you visit the IRS’s website seeking tax information, can you be certain that no one else is monitoring which pages you browse?

Unfortunately, right now the answer to that question is “no.” Unlike Facebook, Twitter, Google Mail (Gmail), and virtually every bank and credit card company, the IRS, like most government agencies, does not use HTTPS for encryption and authentication on its website. If you try typing “mail.google.com” into your browser right now, you will see that the URL you end up at is actually “https://mail.google.com.” That “s” after the “http” may seem insignificant, but it means a lot. It signifies that Google is using Secure Sockets Layer encryption, or SSL, to both encrypt and authenticate its communications. When you visit google.com and you see “https” at the beginning of the address, it lets you know that your connection is secure, and that third parties – such as your internet service provider, employer, or university cannot monitor what you’re doing through the use of network interception technology.

Voices on Human Gene Patents: Gene Discovery, Patents, and the Community

By Sue Friedman, DVM, Founder, Executive Director, FORCE: Facing Our Risk of Cancer Empowered at 11:32am

Recently a dear friend sent me a link to an article in the February 1996 issue of Nature Medicine. The article...

New Documents Suggest IRS Reads Emails Without a Warrant

By Nathan Freed Wessler, Staff Attorney, ACLU Speech, Privacy & Technology Project at 11:00am

Everyone knows the IRS is our nation’s tax collector, but it is also a law enforcement organization tasked with investigating criminal violations of the tax laws. New documents released to the ACLU under the Freedom of Information Act reveal that the IRS Criminal Tax Division has long taken the position that the IRS can read your emails without a warrant—a practice that one appeals court has said violates the Fourth Amendment (and we think most Americans would agree).