Blog of Rights

Filmmaker Joanna Rudnick on Life with the “Breast Cancer Gene” and Human Gene Patenting

By Joanna Rudnick, Activist, Filmmaker at 1:19pm

In the Family (POV 2008) tells the first-person story of director Joanna Rudnick as she tries to decide on a course of action after testing positive for the BRCA1 mutation, the "breast cancer gene." To raise public awareness of the issues being presented in the April 15th Supreme Court hearing in our case challenging gene patents, Rudnick, POV, and Kartemquin Films will re-release the film online for free streaming. The film features Rudnick's probing interview with Myriad Genetics' founder about its patents on the genes. Today, Rudnick gives POV an update on her health and personal life, and addresses the upcoming Supreme Court case regarding human gene patenting. An excerpt of the update appears below – to read Rudnick's thoughts in full, and to watch In the Family, go to: http://to.pbs.org/ZjQjcW

The Battle to Shut Down Virginia's Abortion Clinics

By Alicia Gay, ACLU at 12:43pm

After considerable arm twisting by Virginia Attorney General Ken Cuccinelli, today the Virginia Board of Health approved medically unnecessary regulations designed to force many women's health care centers in Virginia to shut their doors. These costly and unprecedented regulations require many women's centers to meet the building requirements as if they were newly constructed mini-hospitals. The retroactive application of these guidelines to existing health centers is excessive and inappropriate.

Voices on Human Gene Patents: It's Time to Free Our Genes

By Christopher E. Mason, Assistant Professor of Computational Genomics, Weill Cornell Medical College, Affiliate Fellow, Information Society Project of Yale Law School & Jeffrey Rosenfeld, Assistant Professor of Medicine, New Jersey Medical School at 12:29pm

Even though they’ve been in our families since the dawn of man, our genes do not belong to us. They’ve been claimed by companies that hold patents on the DNA from our cells. Over the past 20 years, at least 41 percent of our genes have become the intellectual property of corporations. These patent claims contradict an intuitive sense that our DNA is no less ours than our lungs or kidneys. More importantly, these patents, covering thousands of human genes, restrict our doctors’ ability to look at our DNA and plan ahead for our medical treatment.

Voices on Human Gene Patents: Gene Discovery, Patents, and the Community

By Sue Friedman, DVM, Founder, Executive Director, FORCE: Facing Our Risk of Cancer Empowered at 11:32am

Recently a dear friend sent me a link to an article in the February 1996 issue of Nature Medicine. The article...

"We have come some of the way, not nearly all, there is much yet to do."

By Dennis Parker, Director, ACLU Racial Justice Program at 9:55am

Assessing the legacy of the Fair Housing Act on its 45th Anniversary.

As we celebrate the 45th anniversary of the landmark Fair Housing Act, it is easy to forget how close we came to being denied the benefit of that landmark legislation. After Congress passed the Civil Rights Act of 1965 and the Voting Rights Act of 1965, civil rights supporters were met with fierce Congressional opposition to extend federal anti-discrimination protections to housing. That years-long resistance was only overcome by the anger and frustration that followed the assassination of Dr. Martin Luther King and the growing sense of unfairness that Americans of color could be asked to die in Vietnam but could not rely on the promise of fair housing back in the United States.

Remembering the Real Purpose of Patents

By James Evans, Bryson Distinguished Professor of Genetics and Medicine, University of North Carolina - Chapel Hill School of Medicine at 10:44am

James Evans, MD, PhD is the Bryson Distinguished Professor of Genetics and Medicine at the University of North Carolina Chapel Hill School of Medicine. He was a member of the advisory committee to the U.S. Secretary of Health and Human Services on Genetics, Health and Society and spearheaded that committee's task force investigating gene patenting and its effect on patient care. He also filed an amicus brief in the ACLU's challenge to gene patents.

What Would You Do With $11,000?

By Meghan Groob, Media Relations Associate, ACLU at 4:55pm

Imagine looking at your bank statement and seeing $11,000 more than you expected. If you're anything like me, you would immediately start planning how to spend your newfound riches. Should I be responsible and pay off my debt? Or should I finally take that dream vacation to Paris?

This situation isn't hypothetical. Fifty years after President Kennedy signed the Equal Pay Act into law, women, on average, still make just 77 cents for every dollar a man makes. That adds up to nearly $11,000 in lost wages every year.

18 More Cents...in 50 Years

By Deborah J. Vagins, ACLU Washington Legislative Office at 10:58am

Over the last five decades, women have broken many barriers in education, business, and government. We need look no further than Congress to see the progress women have made: in 1963, Congress had only 14 women. In contrast, the new 113th Congress seated 97 women, the highest representation of women in United States history. The progress of women is also evident across the workforce. Today, women make up half of all workers in the United States and are increasingly becoming co- or primary breadwinners for their families.

Voices on Human Gene Patents: 7 Days Until the Supreme Court

By Bennett Stein, ACLU Speech, Privacy and Technology Project at 10:37am

On April 15, the Supreme Court will hear arguments on a deceptively short question: Are human genes patentable? While the question's phrasing may be succinct and simple, the implications of the Court's answer are vast and critical. On behalf of researchers, genetic counselors, women patients, cancer survivors, breast cancer and women's health groups, and scientific associations representing 150,000 geneticists, pathologists, and laboratory professionals (more info on our clients here), we will argue that the patents on BRCA1 and BRCA2 – two humans genes (your genes!) associated with breast cancer and ovarian cancer – create harmful barriers to scientific progress and medical care. The case is the first challenging whether human genes can be patented.