Blog of Rights

Voices on Human Gene Patents: 7 Days Until the Supreme Court

By Bennett Stein, ACLU Speech, Privacy and Technology Project at 10:37am

On April 15, the Supreme Court will hear arguments on a deceptively short question: Are human genes patentable? While the question's phrasing may be succinct and simple, the implications of the Court's answer are vast and critical. On behalf of researchers, genetic counselors, women patients, cancer survivors, breast cancer and women's health groups, and scientific associations representing 150,000 geneticists, pathologists, and laboratory professionals (more info on our clients here), we will argue that the patents on BRCA1 and BRCA2 – two humans genes (your genes!) associated with breast cancer and ovarian cancer – create harmful barriers to scientific progress and medical care. The case is the first challenging whether human genes can be patented.

Mr. President, Walk With Us On Our Journey for Equal Pay

By Georgeanne M. Usova, Washington Legislative Office & Deborah J. Vagins, ACLU Washington Legislative Office at 3:16pm

Today, the ACLU joined over 100 organizations to send a letter to President Obama asking for executive action to combat pay discrimination.

For far too long, equal pay has been out of reach for many women as a result of workplace discrimination. We know that President Obama agrees, because he made the Lilly Ledbetter Fair Pay Act the first bill he signed into law and has repeatedly called on Congress to pass the Paycheck Fairness Act.

Who Invented Your Genes?

By Sandra Park, ACLU at 10:25am

Who invented our genes? There are many possible answers to this question, but I'm pretty sure your answer wouldn't be, "Myriad Genetics."

But that question is at the heart of our ongoing challenge to patents Myriad controls on two human genes called BRCA1 and BRCA2, which are associated with inherited risk of breast and ovarian cancer. We all have these genes, but people with certain mutations are much more likely to experience cancer in their lifetimes.

Opting out of Gender Stereotypes

By Noah Saenz

This week, as part of our “Teach Kids, Not Stereotypes” campaign, ACLU affiliates across the country filed administrative complaints and public records act requests seeking investigation of single-sex education programs rooted in sex stereotypes. We learned about one of these programs from Noah Saenz, a sophomore at Valley Charter High School in Modesto, California, who contacted the ACLU about the separation of students in his advisory class. 

North Dakota Today. What's Next Tomorrow?

By Elissa Berger, Advocacy and Policy Counsel, ACLU at 5:10pm

Today, North Dakota achieved the shameful distinction of enacting the most restrictive law on abortion in any state. In addition to passing a bill that would ban abortions after only six weeks of pregnancy, Gov. Jack Dalrymple also signed into law a separate bill that targets women with medically complicated pregnancies and a bill designed to shut down the one abortion clinic in the state.

We need to make sure our elected officials know they work for us. We didn't hire them to play doctor and to pass laws that withhold medical care. And yet, some are laser focused on banning a woman's access to abortion care under any circumstances. We need to tell them to #StopTheBans.

Understanding Marital Status Discrimination as Sex Discrimination

By Mie Lewis, Women's Rights Project at 3:19pm

Last month, we filed a complaint on behalf of Jennifer Maudlin, a single mother who was fired for becoming pregnant while unmarried. Jennifer's case is one of a growing number of challenges to employers who fire unmarried workers for becoming pregnant or for using reproductive technologies such as in vitro fertilization. Marital status discrimination against pregnant women and parents is widespread, and the number of Americans who may at some point be its targets is huge. According to the Census Bureau, about a third of pregnant women are unmarried, and the number of unmarried parents is over 13 million. Of unmarried parents who live with their children, women outnumber men by a factor of nearly 6. In addition, many parents, about 2 million, choose to raise their children together while unmarried.

North Dakota Might Ban Abortion. What Do You Need to Know?

By Elissa Berger, Advocacy and Policy Counsel, ACLU at 2:15pm

What passed the legislature in North Dakota?

Two bills are on their way to the Governor's desk: HB 1456 would ban most abortions. The ban on abortion starts very early in pregnancy, before a woman may know the health of her pregnancy and before she may even know she is pregnant at all.

HB 1305 would force health care providers to police their patients' reasons for having an abortion and would ban some abortions because of those reasons, including making it illegal for a woman to have an abortion because of a serious medical complication with her baby. Indeed, this bill would even ban abortions in circumstances when the complication is fatal.

Truly Dishonorable: Military Justice System Betrays Survivors of Sexual Assault

By Elayne Weiss, Washington Legislative Office at 4:49pm

Rebekah Havrilla, a former Army sergeant, received no justice after she was raped by a fellow soldier while serving in Afghanistan.

On Wednesday, Rebekah testified before the Senate Armed Services Personnel Subcommittee at a hearing on military sexual assault, recounting her traumatic and downright appalling time serving in a command culture that tolerated sexual assault and harassment. Her subsequent experience with the military justice system re-traumatized her after she decided to come forward and report her rapist.

How Can North Dakota Pols Ban Abortion? Let Me Count the Ways.

By Elissa Berger, Advocacy and Policy Counsel, ACLU at 5:31pm

Update: The North Dakota legislature passed a bill today that bans most abortions in the state. Should this bill be signed into law by the governor, North Dakota will become the first state in the nation to ban most abortions.

Some politicians in North Dakota are so intent on taking away a woman’s ability to make personal, private decisions they are pushing a package of bills that, together, would ban abortion, prevent women’s health centers from providing comprehensive care, and block many people’s attempts at even starting a family.