Because freedom can't protect itself
I'm not clear on this.
So women send their samples to this Myriad company to find out if cancer is hereditary in their families, and so they can make more informed health decisions. Right?
The woman's doctor in the video hung her head as if the results the company provides have been consistently innacurate. Yes?
Does the company alter genes with an additive they produced in order to provide results?
My impression is that people send off samples of their genes, maybe get accurate results, and then if they want a second opinion, they can't have one because Myriad's secret formula will be revealed if another company gets a hold of the gene sample?
By the way, I don't know if it's just my old computer, but if I type something into this comment box, click somewhere else, and then click back inside the comment box, all the text disappears.
The question of whether or not a corporation can patent gene sequences is a moral one, courts (even Supreme ones!) don't have a great track record on moral questions simply because morality is so subjective...and the Bench can be stacked one way or another according to political whim. Surely a more effective way for us to approach corporations such as Myriad is to neutralize any benefit they may experience from the granting of said patents. The women in your recorded pieces have been injured by Myriad's "invention" either directly or through negligence (Myriad knew of other Asian women with a similar genetic mutation and failed to modify testing practice or protocol to accommodate such a difference) at which point this becomes a personal injury suit rather than a moral crusade. I am not familiar with US convention but certainly in the UK and Australia, a negligence tort carries the potential for unlimited damages. Given Myriad's predilection for litigation, or at least the threat of it, this seems like an appropriate course of action for the injured women to take. Since such a suit is not reliant on the outcome of a Supreme Court decision (if they uphold the patent award Myriad is directly responsible for their invention, if they over turn the patent award Myriad is responsible for the prevention of effective testing in the case of these women) it surely offers the chance of a positive outcome for the victims.
Very well-written letter, Runi. I came across it as I was searching for more information on this subject.
More information about formatting options
Get breaking news on issues you care about
Congress: Restore the Voting Rights Act
Sign up for the ACLU Action newsletter.
Chip in to help protect all of our rights and liberties.
© ACLU, 125 Broad Street, 18th Floor, New York NY 10004
This is the website of the American Civil Liberties Union and the ACLU Foundation.
Learn more about these two components of the ACLU.