Gene Patenting

My Genes Are My Own

My Genes Are My Own

When I was diagnosed with breast cancer, patent law was the last thing on my mind. Then again, I didn’t know that one company could have an exclusive right to the genetic information that could save my life.

Today's the Day: Challenging Human Gene Patents Before the Supreme Court

Today's the Day: Challenging Human Gene Patents Before the Supreme Court

By Sandra Park, ACLU at 10:16am

Today, we're headed to the U.S. Supreme Court for oral argument in our challenge to human gene patents...

Celebrate DNA Day by Taking Back Your Genes

Celebrate DNA Day by Taking Back Your Genes

By Sarah Roberts, Speech, Privacy and Technology Project at 4:05pm

Tuesday is National DNA Day, which commemorates the discovery of DNA's double helix structure by James Watson and Francis Crick in 1953, as well as the successful completion of the Human Genome Project in 2003. In honor of National DNA Day, the…

Hands Off My Genes

Hands Off My Genes

By Rachel Marshall, Washington Legislative Office at 5:21pm

Most teenagers don't sit around contemplating the need for genetic testing. They may not even know the purpose of genetic testing. That all changed for me when I was 13, shortly after my baby brother celebrated his first birthday. He was diagnosed…

Today We Take Back Our Genes

Today We Take Back Our Genes

By Alicia Gay, ACLU at 12:59pm

Today the ACLU is launching a campaign to illustrate the personal harms of gene patenting by showcasing those who have been or may be directly impacted by this practice.

Voices on Human Gene Patents: It's Time to Free Our Genes

Voices on Human Gene Patents: It's Time to Free Our Genes

By Christopher E. Mason, Assistant Professor of Computational Genomics, Weill Cornell Medical College, Affiliate Fellow, Information Society Project of Yale Law School & Jeffrey Rosenfeld, Assistant Professor of Medicine, New Jersey Medical School at 12:29pm

Even though they’ve been in our families since the dawn of man, our genes do not belong to us. They’ve been claimed by companies that hold patents on the DNA from our cells. Over the past 20 years, at least 41 percent of our genes have become the…

Who Invented Your Genes?

Who Invented Your Genes?

By Sandra Park, ACLU at 10:25am

Who invented our genes? There are many possible answers to this question, but I'm pretty sure your answer wouldn't be, "Myriad Genetics."

But that question is at the heart of our ongoing challenge to patents Myriad controls on two human genes…

Barbara Brenner, 1951-2013

Barbara Brenner, 1951-2013

By Bennett Stein, ACLU Speech, Privacy and Technology Project at 11:00am

The ACLU mourns the loss of a great leader, tenacious activist, and close friend of the organization. Barbara Brenner, the longtime director of Breast Cancer Action ("BCA"), was a frequent and trusted ACLU collaborator – as an employee at the ACLU…

Voices on Human Gene Patents: Gene Discovery, Patents, and the Community

Voices on Human Gene Patents: Gene Discovery, Patents, and the Community

By Sue Friedman, DVM, Founder, Executive Director, FORCE: Facing Our Risk of Cancer Empowered at 11:32am

Recently a dear friend sent me a link to an article in the February 1996 issue of Nature Medicine. The article...

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