Medical Privacy

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Human Gene Patents Struck Down: Reactions from the Plaintiffs

Human Gene Patents Struck Down: Reactions from the Plaintiffs

By Sandra S. Park, Staff Attorney, ACLU Women's Rights Project at 4:18pm
For the last four years, I've had the honor of representing 20 amazing organizations and individuals in our challenge to human gene patents. They include: leading organizations of pathologists and geneticists; scientists, physicians, and genetic counselors who work every day to improve our understanding of the connection between genes, disease, and treatment and the care they provide to patients; breast cancer and women's health groups, who spoke out against the effects of these patents on patients; and women who have family histories of breast and ovarian cancer, or who have already been diagnosed with cancer, and faced obstacles to their medical care because of these patents.
Filmmaker Joanna Rudnick on Life with the “Breast Cancer Gene” and Human Gene Patenting

Filmmaker Joanna Rudnick on Life with the “Breast Cancer Gene” and Human Gene Patenting

By Joanna Rudnick, Activist, Filmmaker at 1:19pm

In the Family (POV 2008) tells the first-person story of director Joanna Rudnick as she tries to decide on a course of action after testing positive for the BRCA1 mutation, the "breast cancer gene." To raise public awareness of the issues being presented…

DNA Privacy Goes to the Supreme Court

DNA Privacy Goes to the Supreme Court

By Michael Risher, Staff Attorney, ACLU of Northern California at 5:23pm

The U.S. Supreme Court heard oral arguments today in Maryland v. King, a case that raises the question of whether the police can take DNA...

Health Records Being Uploaded to Databases Without Patient Consent

Health Records Being Uploaded to Databases Without Patient Consent

By Corinne Carey, Assistant Legislative Director, New York Civil Liberties Union at 1:46pm

I just returned from the 2nd International Summit on the Future of Health Privacy in Washington, D.C. where the title of this year’s Summit was: “Is there an American Health Privacy Crisis?” The Summit brought together privacy experts,…

Are Patients About To Lose Control Over Their Medical Information?

Are Patients About To Lose Control Over Their Medical Information?

By Corinne Carey, Assistant Legislative Director, New York Civil Liberties Union at 8:30am

During the Super Bowl two years ago, a commercial aired featuring a doctor questioning his patient, a man in boxer shorts sitting on an exam table, about whether he’d been tested for cortical spreading depression. The patient begins to say he…

Sniffing Out Privacy Issues That May Be In Our future

Sniffing Out Privacy Issues That May Be In Our future

By Jay Stanley, Senior Policy Analyst, ACLU Speech, Privacy & Technology Project at 4:55pm

MIT’s Technology Review has an article today on research that is underway to make extremely sensitive and rapid molecular sensors—aka “artificial noses”—that are so thin they could even be integrated into paper or textiles.

Giving Consumers Essential Transparency on Apps

Giving Consumers Essential Transparency on Apps

By Chris Calabrese, Legislative Counsel, ACLU Washington Legislative Office at 11:54am

Today the ACLU publicly supported a document that we believe will prove to be an important step forward in providing privacy transparency for mobile applications. After more than a year of negotiation among industry, trade associations and consumer…

Data Breach Raises Questions About NASA Policy At Issue in Recent Supreme Court Case

Data Breach Raises Questions About NASA Policy At Issue in Recent Supreme Court Case

By Jay Stanley, Senior Policy Analyst, ACLU Speech, Privacy & Technology Project at 4:35pm

We hate to say “I told you so.”

In 2010, the Supreme Court heard a case called NASA v. Nelson, which involved the government’s right to carry out highly intrusive background checks. NASA decided to require its employees—many…

A Modest Proposal For Protecting Our Privacy

A Modest Proposal For Protecting Our Privacy

By Jay Stanley, Senior Policy Analyst, ACLU Speech, Privacy & Technology Project at 3:38pm

One of the biggest problems with protecting privacy in the United States is that, almost alone in the advanced-industrial world, we do not have an overarching privacy law that codifies the basic privacy principles that are accepted around the world…

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