Myriad Genetics

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Hands Off My Genes

Hands Off My Genes

By Rachel Marshall, Washington Legislative Office at 5:21pm
Most teenagers don't sit around contemplating the need for genetic testing. They may not even know the purpose of genetic testing. That all changed for me when I was 13, shortly after my baby brother celebrated his first birthday. He was diagnosed with a disease called Spinal Muscular Atrophy (SMA), a genetic motor neuron disease that affects the muscles that control crawling, walking, head and neck control, and swallowing. In order to inherit SMA, both parents of a child have to be carriers of a mutated SMN1 gene. If both parents are carriers, their child has a one in four chance of being affected with SMA. While my sister and I are perfectly healthy, there is a chance that we could both be carriers of the mutated SMN1 gene. My brother's doctors have strongly advised that, should we choose to have children, our partners should at least be tested to see if they are carriers for the gene. It was the first time the concept of genetic testing came across my radar, but it certainly wouldn't be the last.
Take Back Our Genes – Join the Fight Against Gene Patenting

Take Back Our Genes – Join the Fight Against Gene Patenting

We can bring an end to gene patenting to ensure the human genome, and all DNA found in nature, is open to everyone for the benefit of everyone – not just corporate profits.

Today We Take Back Our Genes

Today We Take Back Our Genes

By Alicia Gay, ACLU at 12:59pm

Today the ACLU is launching a campaign to illustrate the personal harms of gene patenting by showcasing those who have been or may be directly impacted by this practice.

ACLU Asks Supreme Court to Hear Gene Patents Case

ACLU Asks Supreme Court to Hear Gene Patents Case

By Sarah Roberts, Speech, Privacy and Technology Project at 5:49pm

Today, the ACLU petitioned the Supreme Court to hear our case challenging patents on two human genes related to breast and ovarian cancer.

The case, Association for Molecular Pathology, et al. vs. Myriad Genetics, et al., was filed in 2009…

Your Genes, Your Rights

By Sandra S. Park, Staff Attorney, ACLU Women's Rights Project at 4:13pm

This post is part of Mom's Rising's Blog Carnival on women's health and economic rights, held this week to commemorate the anniversaries of the 1920 passage of the 19th Amendment and the 1963 March on Washington.

When you hear about patents…

 Who Owns Your Genes? The Case Continues…

Who Owns Your Genes? The Case Continues…

By Sandra S. Park, Staff Attorney, ACLU Women's Rights Project at 8:10am

Today, a divided appellate court upheld patents on two human genes associated with hereditary breast and ovarian cancer. The ruling partially reverses a landmark decision by a federal district court in March 2010 that concluded that human genes cannot…

Our Genes, Our Rights — To Be Argued Monday

Our Genes, Our Rights — To Be Argued Monday

By Sandra S. Park, Staff Attorney, ACLU Women's Rights Project at 5:15pm

The ACLU was before a federal appeals court today arguing that human genes should not be patented.  Arguing with us was Acting Solicitor General Neal Katyal, who argued that patents on human genes issued by the Patent Office are invalid.

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