Our DNA can reveal some of our most personal and private information. As genetic sequencing becomes faster and cheaper, there’s a growing risk of that information being collected and used against us or without our consent.
The ACLU has long fought to preserve the privacy of sensitive medical and genetic information. In Maryland v. King, we filed a brief in the U.S. Supreme Court opposing the drastic expansion of state DNA databases to include samples from people who have been arrested but not yet convicted.
We have also consistently opposed attempts to infringe on medical and genetic autonomy. In 1965, the ACLU filed a friend-of-the-court brief in Griswold v. Connecticut, a landmark Supreme Court case that struck down a state prohibition on the prescription, sale, or use of contraceptives and recognized a right to privacy surrounding intimate medical and family planning decisions. More recently, in Association for Molecular Pathology v. Myriad Genetics, the ACLU successfully persuaded the Supreme Court to invalidate patents on two gene sequences associated with hereditary breast and ovarian cancer, thus removing barriers to scientific research and treatment.
- Blog Post - Free FutureSeptember 16, 2016
- Blog Post - Free FutureNovember 29, 2016
Proposal to Expand Mandatory DNA Collection in Virginia Raises Serious Privacy and Due Process ConcernsBlog Post - Free FutureJanuary 8, 2018
- Blog Post - Speak FreelyNovember 25, 2009
Henrietta Lacks’ Story Is a Powerful Lesson That Patients Deserve Full Control of Their Genetic DataBlog Post - Speak FreelyApril 26, 2017
- Legal DocumentMay 18, 2016